New Forum Data and AI Group

Date: 27 April 2021

New Forum Data and AI Group

Introducing new Group Chair Helen Street

Helen works in R&D at Cambridge University Hospitals and leads on the governance and ethics of data studies, in particular research utilising previously collected data and/or developing AI technologies. She has been involved with the setup of several “big data” studies and databases, including studies to test/train algorithms and is responsible for developing processes to facilitate the safe and transparent use of patient data for research.  Helen has a varied background in the health sector and has worked in research management and governance since 2012, as well as being a member of an NHS REC for several years.  She has also conducted  research into consent and secondary uses of patient data, and the governance of dementia studies.

Forming a new Forum Group

Helen would love to hear from colleagues (in R&D or aligned to R&D) whose work involves research utilising routinely collected patient data and/or AI.  This is a rapidly evolving area that presents a number of new challenges.

In the first instance we would like to get people together to discuss the issues and the possibility of establishing a group to share best practice and offer our perspective to regulators. Areas of interest include:

• IG and patient confidentiality,
• transparency and communicating with patients about how their data is being utilised,
• IP and ensuring fair value for the NHS,
• the regulation of algorithms as medical devices and deciding whether retrospective data studies are research/non-research (service evaluation/improvement).

Please email Helen if you are interested to join the group via info@rdforum.nhs.uk

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