New Forum Data and AI Group
Date: 27 April 2021
New Forum Data and AI Group
Introducing new Group Chair Helen Street
Helen works in R&D at Cambridge University Hospitals and leads on the governance and ethics of data studies, in particular research utilising previously collected data and/or developing AI technologies. She has been involved with the setup of several “big data” studies and databases, including studies to test/train algorithms and is responsible for developing processes to facilitate the safe and transparent use of patient data for research. Helen has a varied background in the health sector and has worked in research management and governance since 2012, as well as being a member of an NHS REC for several years. She has also conducted research into consent and secondary uses of patient data, and the governance of dementia studies.
Forming a new Forum Group
Helen would love to hear from colleagues (in R&D or aligned to R&D) whose work involves research utilising routinely collected patient data and/or AI. This is a rapidly evolving area that presents a number of new challenges.
In the first instance we would like to get people together to discuss the issues and the possibility of establishing a group to share best practice and offer our perspective to regulators. Areas of interest include:
- IG and patient confidentiality,
- transparency and communicating with patients about how their data is being utilised,
- IP and ensuring fair value for the NHS,
- the regulation of algorithms as medical devices and deciding whether retrospective data studies are research/non-research (service evaluation/improvement).
Please email Helen if you are interested to join the group via info@rdforum.nhs.uk