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Our resources and outputs, enabling
health and care research in the UK

Resource Exchange

Search Category: Ensuring Patient and Public Involvement

Abstracts from the NIHR Involve Conference 2017
Type: Article
Author: Multiple Authors at NIHR INVOLVE Conference/ BMC Research Involvement & Engagement
Keywords: Patient Involvement, PPI, Engagement, Involvement, Patients and Public
Link Reference: 582
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Being inclusive in Public Involvement (PI) in Health Research: Things to think about for researchers and practitioners
Type: Guide
Author: NIHR Involve
Keywords: PPI, involvement, power, relationships, inclusion, Public involvement, service users and carers, diversity
Link Reference: 747
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Cancer research involvement toolkit
Type: Website resources
Author: Cancer Research UK
Keywords: PPI, Patient and Public Involvement, toolkit
Link Reference: 261
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Consensus statement on public involvement and engagement with data intensive health research
Type: Article
Author: International Journal of Population Data Science
Keywords: PPI, leading research, embedding research, co-production, service users and carers, data, data intensive health research
Link Reference: 738
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Frameworks for supporting patient and public involvement in research: systematic review and co-design pilot.
Type: Paper
Author: Prof Trisha Greenhalgh
Keywords: PPI, leading research, embedding research, co-production, service users and carers
Link Reference: 757
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Going the Extra Mile: Improving the nations health and wellbeing through public involvement in research
Type: Report
Author: Review team led by Simon Denegri. Commissioned by the Director General Research and Development/Chief Medical Officer
Keywords: PPI. Patient and public involvement, Patient involvement,
Link Reference: 529
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Growing pains (or growth and leadership in public engagement with research)
Type: Blog
Author: Bella Starling
Keywords: PPI, leading research, embedding research, co-production, service users and carers
Link Reference: 701
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Guidance for researchers on PPI feedback
Type: Guidance
Author: NIHR CLAHRC- East of England
Keywords: PPI, Giving feedback, Guidance
Link Reference: 616
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Include Ethnicity Framework
Type: Toolkit
Author: NIHR and TrialForge
Keywords: Inclusion, diversity, ethnicity, involvement, Sponsorship, design, research design.
Link Reference: 3635
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INVOLVE
Type: Website resources
Author: NIHR
Keywords: involve, public, involvement, health, social care, PPI
Link Reference: 260
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Involvement Portfolio
Type: Tool
Author: NHS R&D Forum
Keywords: volunteer, carer, service user, record, voluntary, involve, PPI
Additional Detail: For recording involvement in research as a Service User & Carer
Link Reference: 262
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Involving people in laboratory based research
Type: Paper
Author: Shared Learning Group on involvement in research
Keywords: PPI, Service users, laboratory research, involvement
Link Reference: 264
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Involving Service Users and Carers as Co-Applicants, Project Team Members and Co-researchers in Research Guidelines for Sponsors, Research Managers and Governance Leads
Type: Guidance
Author: NHS R&D Forum Service Users and Carers Working Group
Keywords: Coapplicancy, co-applicants, PPI, patient and public involvement, consumers, service users and carers, ethics, governance, legal
Link Reference: 2838
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Is this what we should all know
Type: Blog
Author: Derek Stewart
Keywords: public, patient, blog, Derek, involvement, PPI
Link Reference: 259
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Learning for involvement website
Type: Website resources
Author: NIHR INVOLVE
Keywords: PPI, researchers, toolkit, patient and public involvement, engagement, participation, involvement, learning, training, professional development, learning and development
Link Reference: 741
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National Standards for Public Involvement in Research
Type: Guidance
Author: Standards Development Partnership
Keywords: PPI. standards, embedding research, value, public involvement, involvement
Link Reference: 620
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NIHR Involve guidance on Public Co-applicants in Research – Guidance on Roles & Responsibilities
Type: Guidance
Author: NIHR, HRA and NHS R&D Forum
Keywords: PPI, leading research, embedding research, co-production, service users and carers
Link Reference: 2839
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Patient & Public Involvement Handbook
Type: Guidance
Author: NIHR Research Design Service
Keywords: Patient and Public Involvement, PPI, Research Design Service
Link Reference: 263
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Patient and public involvement for ethnic minority research: an urgent need for improvement.
Type: Paper
Author: Ekezie W, Routen A, Denegri S, Khunti K. Journal of the Royal Society of Medicine. February 2021. doi:10.1177/0141076821994274
Keywords: Inclusion, diversity, ethnicity, involvement, Sponsorship, design, research design. PPI, PPIE, ethnic minorites, involvement
Link Reference: 10660
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Patient involvement toolkit for researchers (updated Dec 2018)
Type: Toolkit
Author: Cancer Research UK
Keywords: PPI, researchers, toolkit, patient and public involvement, engagement, participation, involvement
Link Reference: 712
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Patient powered research: Recognising the power of lived experience in health research.
Type: Blog
Author: Dr Bella Starling
Keywords: PPI, leading research, embedding research, co-production, service users and carers
Link Reference: 657
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Patient Research Ambassador Initiative
Type: Website resources
Author: NIHR
Keywords: Patient Research Ambassador, promoting research, PPI
Additional Detail: Includes resources for Trusts
Link Reference: 266
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Podcast: The impact of PPIE and PPIE in Impact.
Type: Bright Talk
Author: Impact frameworks cultural change conference: Mark Taylor, Trish Greenhalgh, Chris Carrigon.
Keywords: PPI, PPIE, Impact, involvement, inclusion
Link Reference: 10666
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PPI in surgical trials: Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views, and experiences
Type: Article
Author: Crocker et al; Trials volume 20, Article number: 119 (2019)
Keywords: PPI, surgical trials, design, clinical trials, Sponsorship
Link Reference: 779
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Public Involvement Standards Development
Type: Website resources
Author: Health & Care Research Wales & the NIHR
Keywords: Public Involvement, Quality, PPI
Link Reference: 267
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Simon Denegri۪s patient and public involvement updates
Type: Blog
Author: Simon Denegri
Keywords: patient involvement, public involvement, PPI
Link Reference: 265
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SYNAPSE: Synergising Patient Engagement
Type: Website resources
Author: Patient Focused Medicines Development
Keywords: PPI, PPIE, Patient engagement, patient involvement, PPI pledge,
Additional Detail: Patient engagement initiatives, organizations, experts from around the world in one place
Link Reference: 599
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The ethical, governance & management implications of involving consumers in health research
Type: Slide set
Author: Virginia Minogue and Anne Laure Donskoy
Keywords: Coapplicancy, co-applicants, PPI, patient and public involvement, consumers, service users and carers, ethics, governance, legal
Link Reference: 2837
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Time for a new direction -a series of blogs on PPI in research
Type: Blog
Author: Kristina Staley
Keywords: PPI, leading research, embedding research, co-production, service users and carers
Link Reference: 700
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Transcelerate Patient Protocol Engagement Toolkit (P-PET)
Type: Toolkit
Author: Transcelerate
Keywords: PPI, patient involvement, protocol development, Sponsorship, set up, process, Sponsors, sponsor process, design, adding value, reducing waste, delegation of responsibilities, delegation of duties, roles, agreements, oversight
Link Reference: 781
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UK Standards for Public Involvement: Implementation Stories (a handbook)
Type: Guidance
Author: Four Nations Partnership
Keywords: PPI, leading research, embedding research, co-production, service users and carers, standards
Link Reference: 2884
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