Resource Exchange
Search Category: Ensuring Patient and Public Involvement
| Abstracts from the NIHR Involve Conference 2017 | |
| Type: Article Author: Multiple Authors at NIHR INVOLVE Conference/ BMC Research Involvement & Engagement Keywords: Patient Involvement, PPI, Engagement, Involvement, Patients and Public Link Reference: 582 Click here to access the resource |
| Becoming research confident: Research placements in pre-registration nursing, midwifery and allied health programmes in the UK | |
| Type: Report Author: Council of Deans Keywords: Research placements, clinical academic researcher, researchers, students, trainees, HEI, NHS, partnership Link Reference: 23088 Click here to access the resource |
| Being inclusive in Public Involvement (PI) in Health Research: Things to think about for researchers and practitioners | |
| Type: Guide Author: NIHR Involve Keywords: PPI, involvement, power, relationships, inclusion, Public involvement, service users and carers, diversity Link Reference: 747 Click here to access the resource |
| Cancer research involvement toolkit | |
| Type: Website resources Author: Cancer Research UK Keywords: PPI, Patient and Public Involvement, toolkit Link Reference: 261 Click here to access the resource |
| Consensus statement on public involvement and engagement with data intensive health research | |
| Type: Article Author: International Journal of Population Data Science Keywords: PPI, leading research, embedding research, co-production, service users and carers, data, data intensive health research Link Reference: 738 Click here to access the resource |
| COVID-19 AND CO-PRODUCTION IN HEALTH AND SOCIAL CARE RESEARCH, POLICY, AND PRACTICE (Rapid Response) | |
| Type: Article Author: EDITED BY PETER BERESFORD MICHELLE FARR GARY HICKEY MEERAT KAUR JOSEPHINE OCLOO DOREEN TEMBO OLI WILLIAMS (listed alphabetically) Keywords: Co-production, PPI, PPIE, Impact, involvement, inclusion, research, policy, health Additional Detail: Open access Link Reference: 23087 Click here to access the resource |
| Frameworks for supporting patient and public involvement in research: systematic review and co-design pilot. | |
| Type: Paper Author: Prof Trisha Greenhalgh Keywords: PPI, leading research, embedding research, co-production, service users and carers Link Reference: 757 Click here to access the resource |
| Going the Extra Mile: Improving the nations health and wellbeing through public involvement in research | |
| Type: Report Author: Review team led by Simon Denegri. Commissioned by the Director General Research and Development/Chief Medical Officer Keywords: PPI. Patient and public involvement, Patient involvement, Link Reference: 529 Click here to access the resource |
| Growing pains (or growth and leadership in public engagement with research) | |
| Type: Blog Author: Bella Starling Keywords: PPI, leading research, embedding research, co-production, service users and carers Link Reference: 701 Click here to access the resource |
| Guidance for researchers on PPI feedback | |
| Type: Guidance Author: NIHR CLAHRC- East of England Keywords: PPI, Giving feedback, Guidance Link Reference: 616 Click here to access the resource |
| Include Ethnicity Framework | |
| Type: Toolkit Author: NIHR and TrialForge Keywords: Inclusion, diversity, ethnicity, involvement, Sponsorship, design, research design. Link Reference: 3635 Click here to access the resource |
| INVOLVE | |
| Type: Website resources Author: NIHR Keywords: involve, public, involvement, health, social care, PPI Link Reference: 260 Click here to access the resource |
| Involving people in laboratory based research | |
| Type: Paper Author: Shared Learning Group on involvement in research Keywords: PPI, Service users, laboratory research, involvement Link Reference: 264 Click here to access the resource |
| Involving Service Users and Carers as Co-Applicants, Project Team Members and Co-researchers in Research Guidelines for Sponsors, Research Managers and Governance Leads | |
| Type: Guidance Author: NHS R&D Forum Service Users and Carers Working Group Keywords: Coapplicancy, co-applicants, PPI, patient and public involvement, consumers, service users and carers, ethics, governance, legal Link Reference: 2838 Click here to access the resource |
| Is this what we should all know | |
| Type: Blog Author: Derek Stewart Keywords: public, patient, blog, Derek, involvement, PPI Link Reference: 259 Click here to access the resource |
| Learning for involvement website | |
| Type: Website resources Author: NIHR INVOLVE Keywords: PPI, researchers, toolkit, patient and public involvement, engagement, participation, involvement, learning, training, professional development, learning and development Link Reference: 741 Click here to access the resource |
| National Standards for Public Involvement in Research | |
| Type: Guidance Author: Standards Development Partnership Keywords: PPI. standards, embedding research, value, public involvement, involvement Link Reference: 620 Click here to access the resource |
| NIHR Involve guidance on Public Co-applicants in Research – Guidance on Roles & Responsibilities | |
| Type: Guidance Author: NIHR, HRA and NHS R&D Forum Keywords: PPI, leading research, embedding research, co-production, service users and carers Link Reference: 2839 Click here to access the resource |
| Patient & Public Involvement Handbook | |
| Type: Guidance Author: NIHR Research Design Service Keywords: Patient and Public Involvement, PPI, Research Design Service Link Reference: 263 Click here to access the resource |
| Patient and public involvement for ethnic minority research: an urgent need for improvement. | |
| Type: Paper Author: Ekezie W, Routen A, Denegri S, Khunti K. Journal of the Royal Society of Medicine. February 2021. doi:10.1177/0141076821994274 Keywords: Inclusion, diversity, ethnicity, involvement, Sponsorship, design, research design. PPI, PPIE, ethnic minorites, involvement Link Reference: 10660 Click here to access the resource |
| Patient involvement toolkit for researchers (updated Dec 2018) | |
| Type: Toolkit Author: Cancer Research UK Keywords: PPI, researchers, toolkit, patient and public involvement, engagement, participation, involvement Link Reference: 712 Click here to access the resource |
| Patient powered research: Recognising the power of lived experience in health research. | |
| Type: Blog Author: Dr Bella Starling Keywords: PPI, leading research, embedding research, co-production, service users and carers Link Reference: 657 Click here to access the resource |
| Podcast: The impact of PPIE and PPIE in Impact. | |
| Type: Bright Talk Author: Impact frameworks cultural change conference: Mark Taylor, Trish Greenhalgh, Chris Carrigon. Keywords: PPI, PPIE, Impact, involvement, inclusion Link Reference: 10666 Click here to access the resource |
| PPI in surgical trials: Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views, and experiences | |
| Type: Article Author: Crocker et al; Trials volume 20, Article number: 119 (2019) Keywords: PPI, surgical trials, design, clinical trials, Sponsorship Link Reference: 779 Click here to access the resource |
| Public Involvement Standards Development | |
| Type: Website resources Author: Health & Care Research Wales & the NIHR Keywords: Public Involvement, Quality, PPI Link Reference: 267 Click here to access the resource |
| Simon Denegri۪s patient and public involvement updates | |
| Type: Blog Author: Simon Denegri Keywords: patient involvement, public involvement, PPI Link Reference: 265 Click here to access the resource |
| SYNAPSE: Synergising Patient Engagement | |
| Type: Website resources Author: Patient Focused Medicines Development Keywords: PPI, PPIE, Patient engagement, patient involvement, PPI pledge, Additional Detail: Patient engagement initiatives, organizations, experts from around the world in one place Link Reference: 599 Click here to access the resource |
| The ethical, governance & management implications of involving consumers in health research | |
| Type: Slide set Author: Virginia Minogue and Anne Laure Donskoy Keywords: Coapplicancy, co-applicants, PPI, patient and public involvement, consumers, service users and carers, ethics, governance, legal Link Reference: 2837 Click here to access the resource |
| Time for a new direction -a series of blogs on PPI in research | |
| Type: Blog Author: Kristina Staley Keywords: PPI, leading research, embedding research, co-production, service users and carers Link Reference: 700 Click here to access the resource |
| Transcelerate Patient Protocol Engagement Toolkit (P-PET) | |
| Type: Toolkit Author: Transcelerate Keywords: PPI, patient involvement, protocol development, Sponsorship, set up, process, Sponsors, sponsor process, design, adding value, reducing waste, delegation of responsibilities, delegation of duties, roles, agreements, oversight Link Reference: 781 Click here to access the resource |
| UK Standards for Public Involvement: Implementation Stories (a handbook) | |
| Type: Guidance Author: Four Nations Partnership Keywords: PPI, leading research, embedding research, co-production, service users and carers, standards Link Reference: 2884 Click here to access the resource |